Tag Archives: carers centre

Hear from a carer about their journey with dementia — guest post

Steve Hynd writes about his family’s journey with dementia. Reposted with permission from Steve’s blog.

Steve’s mum Jackie with her favourite cow, Emblem.

Yesterday was my mum’s funeral, the end of a long journey that started many years ago. Its initial stages were played out behind the scenes, out of sight, deep inside my mum’s mind. Unknown to any of us, friends or family, the 100 billion or so neurons in my mum’s brain started a countdown. These neurons in her brain threw out neurological branches that connected to more than 100 trillion points, allowing for thoughts and memories to be formed and recalled. Slowly, and completely silently, this number started to drop. With no fanfare, an incredibly awful and utterly incurable process began that would only begin to show itself years later.

When it did show itself, it did so relatively innocuously. It was the odd repeated question, the occasional double take, the subtlest of shifts away from engaging in conversation.

The science behind Alzheimer’s tells us that the areas of the brain most commonly affected early on are those that are used for learning and planning. I remember patiently sitting with my mum trying to explain to her how to use her new mobile phone. The simplest instructions seemingly lost in the seconds following the conversation. In retrospect I can see the folly of trying to explain, and reexplain, something new to my mum. That I failed to mitigate my own behaviour, let alone expectations, to allow for the early onset dementia is both something I regret, and something that makes me feel embarrassed.

How unequipped I was to support my mum in those initial stages leaves a deeper sadness in me now than the ending of her story. She was preparing for one of the hardest journeys of her life, and I turned up with no shoes to walk in, maps to direct me or rations to sustain us. I was woefully ill-equipped.

Continue reading Hear from a carer about their journey with dementia — guest post

2 Ways to Improve Your Wellbeing this Autumn

by Lindsey Clay 

Update 18th September 2018: 

Due to demand we will now be offering an evening yoga and mindfulness 6 week  course, venues and dates the same but with a 6.00pm—7.30 pm time slot.

We are coming to the end of our lovely sunny weather and heading into the beautiful and colourful autumn season. Changes may be happening in our own lives, be it children going back to school, changes in jobs or changes in our own health and wellbeing or that of those we love.

Here at the Carer’s Centre we are always working to help improve the wellbeing of carers within our community through our services. Read on to find out what we’ve got going on…

1. Try our new course of gentle yoga and relaxation

A new 6 week  gentle yoga course on Monday afternoons 1:30pm to 3pm is starting on the 8th October at our Centre in Bath. This is a trial project, so depending on interest from carers we may be able to offer this in other locations around BaNES.

Yoga mats provided (which you can then take home at the end of the course if you wish to help you continue your practice at home).

The course will be lead by Jules Allen who has written a little note about herself below.

I am a Yoga, Relaxation and Mindfulness Teacher, and I work with various organisations across Bath and Bristol. I specialise in teaching yoga, relaxation and mindfulness to people who may be beginners, people who may have health and mobility issues as well as people who have regular wellbeing practices.

Take time to rest and a moment to breathe, stretch & move, meet new people and make new friends as well as everyday ideas, tools and tips for bringing more well-being into their lives.

Having been a young carer, an adult carer and also living with Rheumatoid Arthritis I practice various yoga and relaxation exercises every day and really have valued the overall effect that yoga, relaxation and mindfulness has had for me and with the people I have worked with.

Continue reading 2 Ways to Improve Your Wellbeing this Autumn

Celebrating Carers 2017: Success!

AGM blogFriday, 13th of October was the day of our annual general meeting and Celebrating Carers awards ceremony. Despite the unlucky date, the evening was a great success and was much enjoyed by all attendees.

We are so fortunate to have our wonderful host, Ali Vowles, return to us again this year to really make the evening special. She is such a fantastic presenter and this year was no different, even when some of the script pages went wandering off! As always we are incredibly grateful for her support, so thank you Ali.

The evening was an opportunity to recognise some very special people who have supported the Carers’ Centre, carers in our community or indeed carers themselves who have achieved so much.

Our first winner was one you would have read about before; young carer Becca who looks after her mum. Since being featured on Comic Relief, Becca has used her platform to educate and inspire her peers and adults alike, putting together a presentation and role-play for her school to explain what it’s like to be a young carer.  It was fantastic to reward Becca for her efforts and hopefully inspire her to continue to educate her community for years to come.  Continue reading Celebrating Carers 2017: Success!

Carla Cares: Carers Advice Column

Q: My mum has recently been diagnosed with dementia and I’m finding it difficult to know how to respond when she behaves out of character or says things that I know aren’t true. I was wondering if there is anything I can read or any training I could do that might help me learn how to deal with this?

Many carers find it difficult to know what to do when a loved one with dementia begins to act differently. We’ve put together some advice for communicating and where to find more information.

Try to make sure you’re being as clear as possible when speaking to someone with dementia.

  • Use names, i.e. saying ‘it’s me, Jane,’ rather than ‘it’s me.’
  • Speak in a warm tone and give them extra time to respond to you.
  • Try giving options instead of open questions, such as ‘would you like chicken or beef for dinner?’ rather than ‘what would you like for dinner?’
  • Use non-verbal cues like pictures and touch.
  • Don’t quibble over mistakes or even delusions the person might have, instead try deflecting to a new topic.

Continue reading Carla Cares: Carers Advice Column

Woodlands Re-Opened After Refurb

_DSF9456_smlOur Bath Carers’ Centre, Woodlands, is now re-opened! Closed for four weeks to allow for some much needed refurbishment, we’re back in business and looking bright and shiny.

The Carers’ Centre purchased Woodlands in 2015, with the help of a social investment loan, to provide a permanent place for Carers in Bath and surrounds. Since then, Woodlands has been our home in Bath and has been host to two Bath Half cheer stations, a sponsored walk, young carers family days, pizza nights, a massage workshop, willow weaving and a whole programme of free breaks and activities! Continue reading Woodlands Re-Opened After Refurb

Parent Carer Gets Back Into Work with Employment Support

Sue with her business partner Neill
Sue with her business partner Neill

Sue Judge is a parent carer who looks after her son, Tobias, who has a diagnosis of Asperger’s, along with her other two children. Sue has struggled with the idea of calling herself a ‘carer’ to her son, despite his additional needs that demand more of her than a typical parent.

‘It’s a constant stress that is always there,’ Sue says, of being a carer. ‘I can’t leave Tobias on his own in the house. Caring for someone is a day in, day out job that doesn’t go away and that can be part of why it’s so difficult.’

Through her work, Sue meets many carers and says people often feel the same way as she did.

‘I’ve found it’s an incredibly common theme for people to feel like it’s ‘just their job’ to look after someone – particularly if it’s their child,’ says Sue. ‘And I say to those people that if you don’t look after yourself you can’t give, you can’t pour from a cup which is empty. There is help and support out there.’

When Sue’s mother became ill in 2014 and also needed looking after, Sue had to stop her work as a nutritional therapist for some time.

Continue reading Parent Carer Gets Back Into Work with Employment Support

Surrinder Treks the Himalayas

My name is Surrinder and I am a parent carer for my daughter Nina who is on the autistic spectrum. I have always loved travel; it is so exciting seeing new places, people and being enriched by them.

I am going to be doing the Dalai Lama Trek in October 2015 in aid of the RUH Cancer Care Campaign.

This is something I have always wanted to do and one day in April as I was out walking the poster outside the main entrance to the RUH caught my eye. I had not been feeling very well and all of a sudden I found myself thinking how much I wanted to do this challenge for me. Once I had sent the email requesting more information I was very much on that road. I signed up end of April and have been doing my training walks for the 67km trek as well as fundraising.

I was born in Northern India and I recall my father saying from our house in India we could see the Himalayas, so it is an opportunity to connect with a part of my heritage. It is a challenge on so many levels for me. It is the first time I will be travelling completely on my own and camping for 5 days with only basic provisions. No toilets or showers!

It is time for me to find that adventurous creative part of me that has been lying dormant for a while.

This is my story and if it helps someone else to go out there and do something that they have always wanted to do but haven’t , then go and do it now. Life is for living and sometimes being a carer can become all consuming.  It is easy to lose sight of one’s own needs. Self care is important if you are to continue to give your loved one the support they need.

Sunflower Shoots….

We’re getting quite excited here at the Carers’ Centre as our sunflowers have started to take root. In just 2 weeks our little seeds have gone from this……

SunflowerPlanted

 

 

 

 

 

 

 

To this! Two glorious little plants climbing so quickly to get to the sun they need a little helping hand to keep them upright 🙂

sunflower3

 

 

 

 

 

We may well have a winner on our hands here… But if you’d like to try your luck and see if you can beat us, there is still time to enter! You can either get your seeds from us (find out how here) or you can now enter using your own seeds/plants. Simply enter your details in to the form below by 12th June 2015 and you’ll be included in the grand sunflower competition of this year. There are prizes up for grabs, which will be revealed shortly, so get planting!! The rules can be found here.

YES! I want to enter the sunflower competition