Tag Archives: autism

Carer Story: Mel & Toby

 Mel & TobyMelissa Nash is a mum to two children, and her eldest Toby was diagnosed with Autism at age 4.  

“My lowest point was at a Tesco’s. Toby could go in any Tesco’s in the western world except for our local one. We got in the door and he started screaming, over and over, and it got louder and louder and the rest of the store was getting quieter and quieter. Eventually I was approached by the manager, who was very understanding and I said, I just need this – whatever it was. And she said ‘just have it and go,’ and I left the store sobbing. I didn’t go out for a good couple of years after that.” 

“I learned that you can’t spontaneously do anything; a day trip for example has to be planned with military precision,” said Melissa.  

“In mainstream school he just couldn’t cope. He would sit under his desk. I would collect him and he would throw his bag at me, spit in my face; just the anxiety of the day was too much for him.  

“Once he changed from mainstream school to supported school, he knew instinctively that was the place for him, he became much calmer and more accepting of the way things were.”  Continue reading Carer Story: Mel & Toby

My Young Carer Story

MeeeeeeeeeLast Thursday was National Young Carers Awareness Day, which aimed to raise awareness of our amazing YCs and the unseen work they do every day. Last week we highlighted Joe Lomax, one of our fab YCs. This week, our blog takes a more personal tone, because I want to tell you my story.

My brother is funny and has the biggest smile of anyone I know. He is also severely autistic and has very limited communication skills. When I was younger, this was really hard for me, as I didn’t understand his disability or why he acts the way he does. Additionally, no one at school was in my situation, so I often felt lonely, and like I couldn’t relate to anyone.

Luckily, an amazing Young Carers service really helped me out. I was referred there by a social worker who felt I needed to be with children in a similar situation to myself. She was absolutely right, and that group helped me get out of the house and meet other children in tough circumstances.

I’ve worked at the CC for about seven months and I love my role. I run the YC Twitter account, organise this blog, and I’m currently researching support groups. However, my favourite thing about working here is helping kids with difficult home lives, just like I had at that age. Even simple things like taking them to the cinema or running an art club gives them the chance to relax and have fun. It’s always so great to put a smile on their faces and help a charity like the one that kept me going when I was their age.