September is World Alzheimer’s Month, an international campaign every September to raise awareness and challenge the stigma that surrounds dementia.
Here’s Rosie’s story, who cared for her husband Den who was diagnosed with Alzheimer’s.
“I found the Carers’ Centre about six years ago –I was referred by my GP. I was caring 24/7 for my husband Den, who had been diagnosed with Alzheimer’s disease, and on top of that I had a very difficult full-time job. There was a week when I had come down with a cold – just a cold – and it was just the absolute end of the tether for me. I was exhausted. I didn’t know what to do with Den or how to manage being unwell for a few days. I think that was the point for me when I thought I needed to get some support.
“The first thing the Carers’ Centre did for me was to send me to Ammerdown, a wellness centre, for a 24 hour respite. It was just incredible. I had a bath. I went for a walk. It sounds silly but when you’re caring for someone with Alzheimer’s, telling them you’re going up to have a bath doesn’t mean anything. It’s just not possible. Continue reading Alzheimer’s Awareness Month: Rosie’s Story→
According to the Alzheimer’s Society, about two thirds of people living with dementia in the UK are living at home – usually with the support of a relative or friend who is their carer.
Looking after someone with dementia – the umbrella term for degenerative brain disorders, such as Alzheimer’s – can be incredibly upsetting, isolating and painful. But there is help, support and understanding available that can make things a little easier to cope with.
Founder of Singing for the Brain, Chreanne Montgomery-Smith, said “people hear and read so much about dementia in terms of a decline and the progression of symptoms – that is by far the overwhelming narrative – but people with dementia show us every day that it is possible to live well and to have a progression of hope.”
Ruth Holbrook, who looks after her husband Maurice (both pictured above) has been involved with the Carers’ Centre and other local services since Maurice’s diagnosis. Because Ruth had worked in health and social care, she knew what support was available. Continue reading Living Well with Dementia→
It’s one of the ironies of life that if you ask someone if they know an unpaid carer, they’ll often say no. Even when they’re sat next to the person they look after.
That’s the situation that sometimes faces Carer Hub volunteer Kevin O’Callaghan, who helps support carers at the Royal United Hospital in Bath. People rarely want to sing their own praises, he finds, or ask for help.
But life is full of surprises and when I go to visit Kevin in the hospital atrium, we are immediately met by a couple from Wiltshire. The husband is looking after his wife and his mother and, though in good humour, seems tired and in need of somewhere to turn.
Making a referral to his local carers centre is easily done, but it’s not always the case. Kevin has found that some people can be defensive, especially if they think you want money. Luckily, with his 34 years in sales and marketing at BT, Kevin is quickly able to diffuse the issue.
Q: My mum has recently been diagnosed with dementia and I’m finding it difficult to know how to respond when she behaves out of character or says things that I know aren’t true. I was wondering if there is anything I can read or any training I could do that might help me learn how to deal with this?
Many carers find it difficult to know what to do when a loved one with dementia begins to act differently. We’ve put together some advice for communicating and where to find more information.
Try to make sure you’re being as clear as possible when speaking to someone with dementia.
Use names, i.e. saying ‘it’s me, Jane,’ rather than ‘it’s me.’
Speak in a warm tone and give them extra time to respond to you.
Try giving options instead of open questions, such as ‘would you like chicken or beef for dinner?’ rather than ‘what would you like for dinner?’
Use non-verbal cues like pictures and touch.
Don’t quibble over mistakes or even delusions the person might have, instead try deflecting to a new topic.